Saturday, April 3, 2010

48 Hours of Ups and Downs

Today, we hosted a neighborhood Easter egg hunt gathering with about 30 or so adults and kids. This was a first for us and was an "up". We have done Halloween and other holidays, but never an Easter egg hunt. This ended up being a totally delightful afternoon and evening for us and our wonderful sons. We had a great mix of neighbors and close friends. Tas and Chance had their own little hunting area and the other kids had DOZENS of eggs to hunt for. After the hunt, we cooked up burgers and dogs. Everyone brought yummy sides so we had a delicious feast! The kids played on the swing set and all around the yard. Good time had by all!

Another up, is that our dear friends John and DeDe had a baby boy yesterday! We are totally excited about this! Our sons can grow up together and we can do cool boy stuff together. I went to visit DeDe today. She looked fantastic. Atticus DeMolli is in the NICU for a few weeks so I was not able to meet him, but I saw photos - very cute! This morning, I asked Tas what was in DeDe's belly last time he saw her? He said, "a baby". I said very good Tasman and then told him that DeDe had her baby yesterday. At this news, he had a big smile on his face.

So the craziness going on amidst all this positive energy are some very erratic glucose readings for Chance. Numbers we have not seen in the entire 6 months since he has been diagnosed. It all started yesterday at 4 am. When I did Chance's middle of the night blood test, the pump was beeping that the battery was low. Since it is really complicated to change the battery, I thought the pump would last a few more hours, and I decided that I would change it in the morning. I was wrong.

When I checked Chance at 7 am, his battery had died and the pump had shut off. His blood sugar was around 224. We did a battery change and a site change, bolused Chance, fed him breakfast, bolused him again and sent him off to school. By lunchtime he was over 500.

This is an indication that the site is bad. Heath gave Chance needle injections for his high blood sugar and his carb bolus. Heath changed his site and by 3:30, Chance was 45, which is low. He ate a snack and by dinner, he was 68. Then, at bedtime, he was in the 200s and overnight 400s! Heath corrected him and he dropped to the 200s by morning. By lunchtime today, Chance was in the 400s again!

We called the emergency nurse line and left a message. Chance did not have keytones - a good thing. The nurse really didn't have a lot of insight. Prior to the yesterday, Chance had good, moderate control without these extreme swings. We hope to get him back to that point. It is really common for a low to proceed a high and visa versa, which we have been experiencing. One thing that is key with diabetes, is not to panic and to know that hopefully the bad numbers will pass.

One other up I will mention to close on a positive note. I went to a great Rex pump support group meeting on Thursday. Richard, the person who runs these meetings, had his son who is in college there. I have heard so much about Paul so it was really nice to meet him.  The topic of the meeting was how to deal with planned and unplanned hospital visits. It was very insightful. I feel like I am more prepared now, if we are faced with a hospital visit.

As for Easter, we'll have a nice family breakfast. The boys will get out and enjoy the spectacular weather we are having. Then, Heath is going to make a Greek leg of lamb dinner, which we will enjoy and he will drop off with John and DeDe. After all, life and holidays are really more about giving than receiving.

Happy Easter all!

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